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We are two cousins from the East Midlands. We have created this website to raise awareness of Muscular Dystrophy. Not only this but we would like to offer help and support to anyone who may need it, especially with everything going on in the world at the moment. I have had lots of life experience from having an abusive dad, disabled mum who I helped look after, my mum passing away when I was 13, dealing with different illnesses/disabilities myself and many other life experiences.
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I know how hard life can be sometimes and know that it's sometimes easier talking to someone who doesn't know your story. 
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If you need help, support or just someone to talk to please email us at dwbhenquiries@hotmail.com or send us a message through the contact page. 
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If you would like more information about us take a look at the blog post we did when we first set this website up.
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About Lauren

 

I was diagnosed with Myofibrillar Muscular Dystrophy in January 2017 at the age of 21. My family have been effected by this illness for more than 60 years. Since being diagnosed I've found out I've got 5 heart conditions and weak lungs ... I guess I wasn't just unfit for all them years the doctors said I was being an attention seeker!

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Symptoms I have developed through the condition are:

- Muscle weakness

- Difficulty breathing (yes my lips do turn blue, no I've not got hyperthermia!)

- Poor balance (I've got the scars to prove it)

- Back pain

- Joint stiffness 

I have struggled with these symptoms most of my life but I've learnt there's no point being sad and letting my condition effect how I live. 

I try to think of the positives, enjoy life, keep smiling and never forget don't worry, be happy!

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